RE-BLOG and UPDATE: The Bronze Killer and Me

POST ORIGINALLY PUBLISHED 7/03/2010. I am re-blogging it along with a new section as part of the national campaign for:
HEREDITARY HEMOCHROMATOSIS AWARENESS MONTH

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Still trying to catch up to where I left off before my trip. Too much to do but my body and mind just refuse to cooperate for more than a half-hour at a time. I am truly thankful for the fact that I don’t suffer from the huge mood-swings or periods of sudden rage that often accompanies Hereditary Hemochromatosis, at the same time though, I’m really frustrated by the increasing inability to focus both my mind – and my eyes. It’s like I’ve suddenly developed ADHD at the age of 56 and someone keeps moving my monitor closer than farther away then closer then… Well, you get the idea. HFE is such an odd disease in that it can have so many manifestations and it seems that no two people have the exact same combination of symptoms and the mix changes constantly.

Read More about Hemochromatosis Awareness Month

I’ve got great doctors – but none of them have HFE so they can’t really relate to what I’m going through, and I’ve been searching for other who have HFE to compare notes with. Through those searches, I came across a reference to the book “The Bronze Killer” by Marie Warder and on Amazon.com there were a ton of reviews of the book that were all just raving about how it’s considered the BEST book on the subject of HFE and more specifically, on the experience of the author’s husband and both children having it and how it’s affected all of them. Marie’s husband is like me in that he was not diagnosed until after he had already suffered permanent damage to his liver while her children were fortunately diagnosed before the disease had advanced that far. I ordered the book on Tuesday and received it Thursday. I used to read at least 1 book a day but those days are long gone and so I’m only on page 11. I’ll fill you in as I get farther along.

UPDATED INFO:

The importance of sharing medical records and information with your immediate family members must not be taken lightly or ignored. People rarely feel any significant symptoms of Hereditary Hemochromatosis (HFE) until it’s too late to avoid permanent, life-threatening harm. But unlike an unexpected car crash, broken spine, or burst appendix, the majority of cases of HFE CAN be predicted, tested for, and even prevented IF there is a known family history of a combination of certain risk factors (even where there’s no family history of HFE having been diagnosed). If a patient is found to have any of the genetic defects that can lead to Hereditary Hemochromatosis, from one or both of their parents, and before they have suffered any permanent damage to their organs, there are easy steps to take that can prevent most or possibly all of the debilitating and dangerous effects of the full blown disease and allow that patient to live a “normal” life and have a “normal” life-span.

Most people think that because they personally were never diagnosed with HFE then there is nothing in their medical records that could possible be of help to their family. WRONG! That’s because, despite being the most common of all genetic diseases, HFE is very rarely diagnosed. Before 1996 there wasn’t even a test that could positively identify it! But our medical records contain much more than a list of diagnosis and treatments. Doctors keep notes of symptoms you complain of, what they have tested you for, the raw results of those tests (meaning just the numbers without interpretation), and what the doctor suspected as well as ruled out as the cause of your symptoms. These are the most critical parts of your records because it is not a single number that is too high or too low that would indicate you MIGHT have Hereditary Hemochromatosis – rather it is the combination of which numbers are low, which are high, and which are “normal” – and how consistent those numbers remain or whether they steadily increase or decrease over the years and in combination with what other symptoms and diseases or conditions. So the judgment of which records are needed cannot be made by someone with either a conflict of interest and/or a lack of the specific medical training to understand the interplay of such information.

Yes, we each do have the right of privacy when it comes to our health records – but PLEASE consider the fate of your family: siblings, children, parents, grandchildren, and 1st cousins. Carefully weigh what is really more important: that none of your family ever find out you once had Herpes or an abortion or whatever else may be embarassing or even shameful – OR – that you can actually help save your loved ones lives or atleast allow them to have a better quality of life for a longer time simply by sharing your un-edited medical history?

A good way to start the dialog with your family members on the importance of being open and sharing, the Surgeon General of the United States has launched a public health campaign and has provided tools to help you create a Family Health Portrait. Access the My Family Health Portrait Web tool at https://familyhistory.hhs.gov/.

Now, back to the original blog post:

Completely off-subject but appropos for this weekend when those of us who are blessed to be Citizens of The United States celebrate our Independence Day on the 4th of July, I’ve created a few patriotic icons as well as a Desktop Picture (in 3 different screen sizes) for you. Enjoy!

Free Clip-Art / Icons & Wallpaper of the Day

The following images are either full or reduced size previews. Simply right-click (or control-click) on the preview to save the image(s) of your choice to your desktop. (Unless otherwise noted, downloads are 512px X 512px in .png format). As always, usage of any of the images offered on this blog are free for your personal use while subject to the limitations of my Creative Commons Non-Commercial – Attribution – No Derivatives 3.0 license. (See sidebar for details)

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Organizize!

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A very short post tonight to deliver up a 2nd serving of my “Organizize!” Icon Series. Tonight I present for your pleasure, four well-used oak file drawer images for your Accounts, Medical Records, Shopping Lists and Receipts, and Desktop or Scrapbook Wallpapers. Hope you enjoy them! I’ve got more coming over the next several days, but if you have any special requests, just leave a comment to this post and I’ll give it a whirl.

Sometimes I get asked where do my ideas for clip art, icons, or paintings come from. This particular series was created originally for my cousin, Flora Spector, who developed and maintains a few different websites (including several of her own) geared to fans of Sherlock Holmes. A couple of years ago, when she was looking to update one of the sites, I designed a few different concepts that I thought would be perfect. Alas, Flo didn’t feel any of my artwork fit what she had in mind. Normally, I would simply try to get a better understanding of what a “client” is looking for and try again, but this happened just at the time when I was undergoing a particularly grueling round of chemo and was having a hard time even sitting up or focusing my eyes. So – I put that artwork on the back-burner and forgot about it, while Flo went ahead and either created the artwork she wanted herself or hired another graphic artist. The site came out quite nice – but very different from what I had in mind, so I see why she didn’t find my designs suitable. A couple of weeks ago, when I was cleaning up my digital archives, I came across that artwork again. Seemed a shame to let all that work go to waste, and so, hopefully, now it won’t!

By the way, if you’re a “Sherlockian” or know someone who is, you might want to check out my cousin’s two related websites (or any of the other Sherlockian Web Ring sites that link to hers). One of Flo’s websites is a blog she maintains for her alter-ego “Mrs. Hudson” (yes, THAT Mrs. Hudson!) at: The Musings of Mrs. Hudson. Another of her websites is for one of the Sherlockian groups she belongs to, The White Rose Irregulars, which holds their meetings in and around Reading, Pa.

Free Clip-Art / Icons of the Day

The following images are either full or reduced size previews. Simply right-click (or control-click) on the preview to save the image(s) of your choice to your desktop. (Unless otherwise noted, downloads are 512px X 512px in .png format). As always, usage of any of the images offered in the “Free Clip-Art / Icons of the Day” section are free for your personal use, subject to the limitations of my Creative Commons Non-Commercial – Attribution – No Derivatives – Share Alike- 3.0 license. (See sidebar for Terms of Use) For commercial or any other use, please contact me for directly.

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WHAT’S NEW ON ZAZZLE

Justice Watch – Day 4,762

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Oh Nooooo! Not Again! – Well, it’s actually not “again” but rather “still”. Same case – new phase, as the legal process drags on and on… But still praying that soonit will finally be really over. As my regular readers may recall, the last time I posted on this topic, I had won on my opposition to my adversary’s appeal and won on my cross-appeal, and won on my objection to my adversary’s attempt to have the appellate, but rather than accept her defeat with some measure of professionalism, dignity and grace, my adversary filed a motion to have her appeal reviewed by Florida’s State Supreme Court. That was way back in October 2010 and to date, there has been no word from the Florida Supremes as to whether or not they will even accept the case. I’ve been told that could take as long as 2 years just to find that out, at which point if they do accept the case (a long shot at best) only then will it be time to prepare and file briefs on the merits of the issues before that court.

In the meantime, no “stay” on the 4DCA’s mandate has been granted by that appellate court, which means that once I file a motion detailing all of the legal fees and costs I’ve had to pay as well as providing argument and legal support for the additional sanctions that I’ve asked for, the trial court (Broward County’s infamous 17th Circuit) is required to hold a hearing to determine the $$ amount that my adversary must pay me and issue a final judgment accordingly. The good news is that my attorneys filed that motion yesterday! So progress is being made, slowly but surely, and I continue to pray and have faith that justice will prevail.

In keeping with the theme of the above post, tonight’s serving of free clip art, are a variety of law-oriented images I created as Part II of my “Brass Balz” series. Enjoy!

Free Clip-Art / Icons of the Day

The following images are either full or reduced size previews. Simply right-click (or control-click) on the preview to save the image(s) of your choice to your desktop. (Unless otherwise noted, downloads are 512px X 512px in .png format). As always, usage of any of the images offered on this blog are free for your personal use while subject to the limitations of my Creative Commons Non-Commercial – Attribution – No Derivatives – Share Alike- 3.0 license. (See sidebar for details)

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WHAT’S NEW ON ZAZZLE

Criminal
Criminal Law (iPad Case)
Whether you’re a prosecutor, criminal defender, or just a Law & Order fan, this original tongue-in-cheek original design in subdued shades of grey on black for your iPad case will make your day. Customize with your name.
More gifts & accessories for lawyers can be found at: zazzle.com/IconDoIt*
Quilt ‘n Glass Mogen David (card)
Quilt ‘n Glass Mogen David (card)
For Passover, Weddings, Bar/Bat Mitvah or anytime, the rich and beautiful original artwork on this greeting card will garner attention and appreciation. Customizable text inside.
More Judaica themed cards, gifts and accessories can be found at: zazzle.com/IconDoIt*
Easter Dawn (card)
Easter Dawn (card)
Gloriously bold, original design in jewel-toned colors on this Easter Card are a great example of why the works of artist Leslie Sigal Javorek are already becoming collectibles.
More Easter cards and gifts can be found at: zazzle.com/IconDoIt*

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