When There is No Cure

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Science and medicine have come so far over the last 50 years that it’s easy to presume there is a “cure” for everything, or at least a treatment that’ll ease any pain or other disabling symptoms and extend your life. But that is hardly the reality for millions of folks suffering from either rare or just simply mysterious illnesses that medical researchers have yet to crack. I don’t know what is worse: to find yourself saddled with conditions in the class of those “un-cracked” diseases or to be suffering from diseases and conditions for which treatments (or even cures) ARE available but you can’t take them because you either can’t afford it or because you have other diseases or conditions at the same time that make you ineligible for such treatment. I happen to be in that last category and can honestly say it really sucks! But I also think that there is no good reason for anyone to actually try to weigh “what sucks more” as that would end up invalidating the frustrations and grief experienced by those in whichever group is found to “suck less”. Nothing positive can come out of being subjected to others who try to deny the reality of your situation and who attempt to invalidate your feelings. All it accomplishes is adding to the frustration, stress, and feelings of isolation you already feel.

While those who suffer from any medical condition in any of the above categories can (and should) attempt to educate their family, friends, bosses and coworkers about the reality of their situation (particularly if does or can have a direct impact on those others), too often those “others” don’t WANT to be educated. Usually, such reactions are out of fear for their own health, comfort, or other personal interest. But IMHO, from my personal observations, any benefit gained from sticking one’s head in the sand is doomed to be short-lived and eventually regretted. (Ed. That’s not intended as a threat to anyone, as it is simply the statistical truth based on experience and the laws of probability). Quite candidly, I’ve finally learned to recognize that the consequences suffered by such Ostriches, due to their deliberately maintaining a status of “plausible deniability”, is THEIR problem, not mine. I am no longer willing to waste my time trying to open the eyes of those human ostriches as experience has taught they will only ever see what they want to see. My mission is not to console the regretful naysayers, but to help myself and others who face no viable treatment or cure available to them. My 2012 plan towards achieving that goal via my blog is to research, explore, blog and share different ways to Live (with a capital “L”) even while we’re struggling just to survive.

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L’Chaim

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“L’Chaim” is Hebrew and is a common toast and greeting meaning “To Life”. That’s a subject I think about every day. Grateful for the gift of life. Trying hard to make mine worthwhile. To make a positive difference in this world that’ll survive me and get passed on to others and to future generations. Trying to glean what I can as to what G-d has in mind for me and what I must do to earn his respect. Trying to learn something new each day and to take notice of everything so I won’t forget. Trying hard not to trip over the hurdles in my life and to not let myself give in to anger or self-pity. Trying to find each day, something to delight in, and something to say “Thank You” for. It’s a full time job for me these days but it carries me through. And I wish for you all, L’Chaim!”. Don’t let it go to waste.

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a.k.a. “Rip Van Winkle”

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Geezus Frog! Is it 2011 already? I seem to have overslept a bit… :-)

For those of you wondering where the heck I’ve been for the last month or so, or those who were worrying whether I had gotten too big for my britches and abandoned this blog in favor of fame and fortune in the world of commerce: I thank y’all for caring so much, for the many private e-mails, for your patience and forgiveness, and assure you that my feet are still squarely planted on the ground (or at least metaphorically as they are actually at a right angle to the ground and hiding beneath several layers of quilts and blankets).

As the subtitle of this blog declares, the theme here is “The Art of Survival”, and that is what I’ve been doing: Just trying to survive. If you’ve ever been pregnant or observed it from afar, there is an odd phenomenon where a few days before the babe makes his grand entrance, Mom2Be gets a splurge of energy and accomplishes incredible feats of creative and physical effort. It could be anything from chopping enough firewood to keep the kid warm through kindergarten, wallpapering the entire house as well as the neighbor’s, or stripping and finishing an ancient grand piano. Well, my body, for some weird reason, adopts that routine whenever I’m just about to suffer a relapse, and that’s just what happened this time after enjoying a flurry of creative activity from Sept.-Nov. I’m still having a hard time of it and really have no way to predict how often I’ll be able to post but I’m hoping to get back here at least once a week for as long as I can.

In any case, while I’ve been “away”, if I hadn’t known before, I was reminded once again of the riches I’ve been blessed with in friends. Janie, Mi’chele, Art & Enid, Steve & Sue, Barry & Sharon, and Michelle B. too, are each the jewels I shall always cherish. In goodtimes or bad, in silence or song, these are friends who linger long, whether close or far away. What I’ve done to deserve you I have no idea but pray I can live up to your example.

“But friendship is the breathing rose, with sweets in every fold.” Oliver Wendell Holmes

”There is nothing worth the wear of winning, but laughter and the love of friends.” Hillaire Belloc

”Friendship is unnecessary, like philosophy, like art… It has no survival value; rather it is one of those things that give value to survival.“ C. S. Lewis

”If you think that the world means nothing, think again. You might mean the world to someone else.“ Unknown (fun link but I doubt this quote was his)

“One loyal friend is worth ten thousand relatives.” Euripides (408 B.C.)

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